In the library, Every month is disabilty month

So many books, so little time.

July, the month when the Americans with Disabilities Act, or ADA, was passed, is Disability Pride Month. Today, it’s not July, but every month is an opportunity to honor the history, achievements, experiences, and struggles of the disability community. Things many of us expect (sort of) now, like accessible public buildings and public transportation, only came about thanks to the tenacious activism of people with disabilities and their allies.

You can immerse yourself in the work of disabled writers in any month. In a previous post, I focused on the brilliant disabled poet, essayist, and activist, Laura Hershey. Here are some books by another favorite writer: Sandra Gail Lambert. Okay, she’s my friend, too.

Sandra’s memoir, A Certain Loneliness, published by University of Nebraska, is a classic text about growing up disabled. As an “old polio,” a person who contracted polio during the mid-twentieth century epidemic, growing into her adult identity as a disabled lesbian, she learns how disability can become more complex as we age. With the focus on the body personal and the body politic you might anticipate in a book from Sandra if you’ve read any of her fine essays, this memoir resonates with joy, even as it sometimes burrows into pain and frustration with forces that work against community. It contains some of the most eloquent, visceral descriptions of chronic pain I’ve ever read. Having access to her rendering of her arm and shoulder pain (think of hauling yourself around on crutches for decades) and the deadening fatigue of continuing to work as a book seller through that pain was analgesic for me when I struggled with chronic pain while working a desk job.

But wait, there’s more! Sandra recently published an environmental thriller on her Substack and as an ebook. The Sacrifice Zone is a wholly original page-turner that’s kept me up past my bedtime. Set in Georgia and Florida, the main character, Vicky Jean to her family and Vic to others, is a journalist who comes from a family attached to their coastal Florida environment in deep and sometimes disturbing ways. When a nuclear plant near her family home explodes, releasing a deadly toxin, Vic is in Washington DC in her first media job out of college. Told that her whole family has been wiped off the map, she doubles down on investigating the explosion, the toxin, and the chaos that follows. Something isn’t right, and it never was.

And still more! In March, 2024, University of Georgia will publish Sandra’s essay collection, My Withered Legs. The title, in case you’re wondering, is both ironic and sarcastic; it was a phrase tossed at Sandra by a long ago editor who thought she needed to describe how her legs look. The editor didn’t know what Sandra’s legs looked like, but still felt free to offer the phrase “withered legs,” a description the editor imagined on their own. Well, some people think they know what it’s like to be other people without even asking.

Thank the stars for reading, which does allow us to experience at least a smidgen of another person’s life if we can forego varnishing it with our own expectations. My Withered Legs is now available for pre-order from the University of Georgia press, and online outlets including Barnes & Noble and Amazon.

Honoring Laura Hershey — #CripLit Goddess

Image result for laura hershey
Image description: Book cover featuring photo of Laura Hershey, a white woman with O2 line and wheelchair, at her desk.

The publication of a new book by an author you love is a wonderful thing, perhaps especially when that author is no longer in this world  Last month, a posthumous collection of Laura Hershey’s poetry and prose was published by The Unsung Masters Series, a project of Pleiades Press, Gulf Coast Journal, and Copper Nickel Journal.

Hershey passed away after a sudden illness in November of 2010; this came as a shock to her many friends and followers, including me. I’d met Laura when she organized a WOM-PO event at the 2010 AWP conference in Denver. About 30 women attended the lunch, exchanging news about recent books and publications.

I’d become familiar with Laura’s work through the WOM-PO listserv, and deeply admired her incisive intellect and her writing on personal and political facets of living as a disabled woman, and I was anxious to speak with her about her work. At the time, I was working on a chapbook of poems about my experience with hepatitis C and stigma. After some conversation, we embarked on an exchange of poems via email for mutual feedback.

Laura and her long-time partner Robin Stephens had recently adopted a teenage girl, and many of her poems in our brief exchange centered on her new daughter. As an adoptee raised in a fucked-up home, I had a bad taste in my mouth about adoption in general. Laura’s poems were a palate cleanser for me. I had no idea that an adoptive parent could focus, as she and Robin did, on learning all they could about who their daughter was, understanding her daughter as an individual, and acting for the benefit of their child.

The Unsung Masters Series project is an important one, but Laura Hershey was hardly unsung in the many communities she touched with her poetry, prose, and activism. For a sampling of her international influence, check out her website, which continues to live on after her death.

She put her considerable energies to work for both the theory and practice of LGBTQ and disability rights. In addition to her prolific writing, she worked with ADAPT, Not Dead Yet, and other disability rights activist groups. Among other issues, she advocated for universal design — a world that is ready-made for all of us — because, as she asked, “what could be more universal than having a body?”

One of Laura’s poems, “You Get Proud by Practicing,” was set to music and also became a rallying cry for many people with disabilities. It’s included in this important book. Here’s an excerpt:

 

You Get Proud by Practicing
by Laura Hershey

If you are not proud
For who you are, for what you say, for how you look;
If every time you stop
To think of yourself, you do not see yourself glowing
With golden light; do not, therefore, give up on yourself.
You can get proud.

You do not need
A better body, a purer spirit, or a Ph.D.
To be proud.
You do not need
A lot of money, a handsome boyfriend, or a nice car.
You do not need
To be able to walk, or see, or hear,
Or use big, complicated words,
Or do any of those things that you just can’t do
To be proud. A caseworker
Cannot make you proud,
Or a doctor.
You only need more practice.
You get proud by practicing.